Etta J. Vinik, MA(Ed)

Associate Director of Education, Program Coordinator for Sleep Medicine and Nephrology Fellowship Program, EVMS Strelitz Diabetes Center

Etta Vinik has worked in the field of education for many years, teaching high school Latin and English, then, in 1980, turning from the field of humanities to technology and education to adult audiences. After graduating from the University of Michigan with a master’s degree in instructional technology, she entered the corporate and medical world, writing technical manuals for software, designing training for industry, and producing medical programs. These included an exercise tape, “Get up and Go,” to fulfill the physical needs of post-surgery breast-cancer patients, and a videotape, “Hobson’s Choice,” used as a teaching tool for medical students at the University of Michigan Hospital to address the emotional needs of patients on adjuvant chemotherapy.

In 1990, she accepted the position of Associate Director of Education at the Strelitz Diabetes Center, coordinating and designing education programs for patients, medical professionals and the community. Her duties included organizing the weekly continuing medical education program, Endocrine Grand Rounds, and major conferences and workshops for health professionals. She organized education for the general public by participating in health fairs, walkathons, etc; also producing publicity pieces used for brochures, letters and web site information. She worked with the nurse educator to improve the quality of the patient education program by reviewing outcomes and reassessing goals and objectives of the program according to the standards of the American Diabetes Association.

Etta Vinik's special interest is research into quality of life of patients afflicted with neuropathy, or neuroendocrine tumors, or fatigue. This interest has resulted in the development of three questionnaires designed to capture patient reported outcomes resulting from 1) Neuropathy, 2) Neuroendocrine tumors, 3) Fatigue, respectively - Norfolk QOL-DN, Norfolk QOL-NET, and Norfolk QOLF. She has published five articles in peer reviewed journal and three book chapters related to the fields of interest mentioned above. She is a reviewer for several journals focusing on patient-related outcomes and has served on the committee for the International Society for Pharmacokinetics and Patient Reported Outcomes for developing the ISPOR TOOLKIT; she also acts as a reviewer of abstracts for presentations at ISPOR annual meetings. Her abstracts on quality of life have been accepted for publication and poster presentation at the American Diabetes Association’s national meetings in 2002 (Selected for Publication in Daily Reviews) and in 2003 (regular scientific posters and one in Late Breaking News); the International Diabetes Federation’s meeting in Paris in 2003; at ISPOR in May 2003, 2005, and 2009; at the European Neuroendocrine Tumor Society's 4th Annual ENETS Conference in Barcelona, March 2007;and atthe National Association of Neuroendocrine Tumors in 2009. In 2012, she was invited to an international conference in Taipei to present on quality of life studies using the Norfolk QOL-DN and in 2013, she is an invited speaker to an international neuropathy conference in Romania. The Norfolk QOL-DN has been used in clinical studies worldwide and translated into thirty seven languages.

Etta Vinik is now also Program Coordinator of the Sleep and Nephrology Fellowship Programs.